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Post by ambersmum on Sept 4, 2007 21:24:06 GMT
We saw the ENT specialist last week for results of sleep study.
They saw 10 incidents of low oxiginisation in the study which is apparently minimal as far the study goes. All incidents occurred after 4 am which is the most problematic area of Amber's sleep. Consultant said that he has absolutely no worries regarding the study and i should put these problems and restlessness down to behavioural problems.
I'm really glad of course there are no medical issues involved but obviously a nights sleep is still out of the question. I'm considering getting a queen size bed for Amber in the hope that this will make her more comfortable when she is rolling around. Also considering getting her checked out for Asthmatic problems as she was semi-diagnosed in Holland but not here. I'm thinking this may explain low oxidisation.
Anyone's child got Asthma ? Am i clutching at straws with the bigger bed ?
Karin
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Post by pinkshell1110 on Sept 4, 2007 22:45:35 GMT
hi there charlie has asthma but fortunately it doesn't affect his sleep !!!!!!!!! Have you tried a humidifier?, we had one while charlie was on oxygen and it did wonders for his snotty nose, as his snotty nose used to disturb his sleep,i think the steam helps loosen things up like mucous etc, we still use it occasionally if he is wheezy .i think you can also buy those plug in thingys that have something like karvol in them .......
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Post by tracy108 on Sept 5, 2007 8:58:00 GMT
hi, karin can i ask you what your sleepin prob was or is as i have probs with cory and wonder if they are similar.....
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Post by ambersmum on Sept 5, 2007 20:15:45 GMT
Amber's really restless. She goes around the bed loads wakenening regularly, all alnight long, worst 4 am onwards. She falls out regularly with or without bedgate. She generally wants to sleep sitting up even when she's not snotty.
She wakens in the morning still tired, it's just such a concern, she's doing so well right now but if she wasn't so tired it would make it so much easier for her to learn and take part in life.
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Post by ambersmum on Sept 5, 2007 20:16:35 GMT
Thanks for the tip about the humidifier, will check it out, hope they're not too expensive though !
Karin
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Post by ambersmum on Sept 5, 2007 20:17:47 GMT
Does Charlie take his inhalor easily or does he struggle ? Amber didn't make it easy when we had inhalors in Holland !
Karin
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Post by tracy108 on Sept 6, 2007 8:53:30 GMT
that sounds like cory...but i also have the problem that he wont actually go to sleep either..he could sleep for 10 mins and thats his batteries recharged for another 24 hours...cory now has a natural medication to actually make him drop off but it doesnt mean he will sleep all night and like you i also find asleep in some strange places and potions around the room and im afraid to wake him coz then the day begins so i usually cover him up where he is...and the waking is usually around 3 or 4 am so you aint alone karin i really feel for you and i thought i was the only one...lol
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brandy
Junior Member
Posts: 194
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Post by brandy on Oct 12, 2007 21:34:39 GMT
hi just to let you know you are not alone.lol.brandon is 5 now and has never slept.he had a sleep study 3 years ago it turned out he had sleep apnea and had to have his tonsils out.since then he has still not slept like your kids he moves around constantly and gets up alot in the night.we tried the melotonin but it had no effect because he still woke and got up probably 7-10 times anight.he also gets up at around 5:30am.after many years of sleepless nights he started to fall asleep at school.so at last the doctor has gave us some meds called chlora hydrate and it totally knocks him out and he stays still all night.lol.he still gets up at 5:30am but he is better.so to all i understand how tired you are.and i did think i was on my own with this lol so thanx for letting me know i'm not.
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