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Post by claireyd22 on Mar 4, 2008 22:31:31 GMT
George had his hearing tests done again today to make sure his hearing aids are still set to the right level for him. He did really well with the tests, hearing between 30-40. They have said to me to do some little tests in the mornings and decide if i think he needs the hearing aids that day or not. He;s got glue ear which was measuring the same as always but they said it can change thickness which would have an effect on the level of hearing that he gets. I feel really confused now as to when he should be wearing his hearing aids. I've been battling with him since July to get him to keep them in and he;s getting quite good now - typical lol. Has anyone else had this experience? x
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Post by max on Mar 5, 2008 8:17:58 GMT
Has he got hearing loss as well as glue ear or just the glue ear? I don't understand any of this yet!!
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Post by claireyd22 on Mar 5, 2008 14:40:47 GMT
I know Max, I do get confused too. They are pretty sure that George's hearing loss is just down to glue ear - they won't do grommets on him yet as his ears and ear canals are so tiny x
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Post by pinkshell1110 on Mar 5, 2008 15:41:03 GMT
hi claire we had the same with charlie, we had to wait until he was 3 1/2 even then they could only do one side cos the other was still too small, charlie's has already fallen out in only 6 months ,we go back on friday so i'm hoping we can get both sides done this time, i have noticed though that he has had repeated ear infections since he had it done, which he never had before, he has one at the mo and is getting a horrible smelly pus coming out yuk !!!!!!!
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Post by claireyd22 on Mar 5, 2008 22:13:18 GMT
Yeah they said to us they he could be more prone to ear infections if he had grommets, he's never had one yet (touch wood) so would be a bit worried about that. I've also read somewhere that they only like to put grommets in up to three times because of the amount of scar tissue left on the ear drum. I hope all goes well for Charlie on Friday xxx
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Post by lisajg on Mar 7, 2008 11:05:43 GMT
Hi Claire, do you mind me asking what kind of tests they've asked you to do to check if he needs his hearing aids? Harrison has a volume control on his aids now, I'm supposed to adjust them up and down depending on how bad I think his hearing is but all I've been doing is guessing - I turn them up if he's got a cold or a bit more chesty than usual.
Well done for persevering with the aids anyway, it can be soul destroying sometimes when they keep taking them out. Harry took his out in the car this morning and when I turned round he was chewing it!!! He's had eczema in his ears lately so I have to check before putting the aids in now and I leave them off if his ears are sore, it's quite frustrating because he was starting to get really good with wearing them too. xx
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Post by claireyd22 on Mar 7, 2008 21:06:16 GMT
Lisa, they said to ask him something that I know he understands like 'wheres your nose' but say it in a quiet voice and see if he does it. Its all a bit confusing really, because they said that one to one if he's close to me he will be able to hear everything I say but accross the room he wouldn't be able to hear all of the words. I asked about when we're a mothers and toddlers should he be wearing them then, as I didn't want to put them in if it was making everything to loud. They said that he'll take them out if its too noisy for him, but I've spent the last 7 months putting them back in, so how do I know if he;s taking them out because he just doesn;t like them or if its because its too noisy. We see the consultant again in April so hopefully things will be a bit clearer then. You said about Harrison chewing his hearing aid in the car, George is exactly the same so i never put them in when we're in the car. Last week at the cdc all the mums go off for a coffee and the kids stay in the playroom with the carers. Well one of them came rushing into the parents room saying that George had took his hearing aids out and they could only find one ear mould, I said it'll be in his mouth, so we rushed back to him and he was sat there chewing away on it lol, little monkey xx
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Post by lisajg on Mar 8, 2008 20:18:08 GMT
It's difficult to know what to do for the best sometimes isn't it, not sure those tests would work with Harry as I'm sure he has 'selective hearing' sometimes anyway, lol. Some days I even wonder if the hearing aids are making a difference at all but last week I left them off one day because his ears looked a bit sore and when we collected him from nursery they said he seemed less aware and they had to work harder to keep his attention. Have been trying to get him one of those BAHA softband aids which goes round their head but our local health authority won't fund it - would probably be hard work trying to get him to wear that too, lol xx
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