Just got a letter awarding Caleb HIGHEST rate DLA - apparently highest because he has night terrors at times! Otherwise it would have been middle. They said that as I got the form in a day late (post fault not mine) I don't get the backdated bit though!
This means I can get carers Al and can afford to give up work!
Im a bit confused about DLA (it doesn't take a lot to confuse me!!!) Lucy has no health probs apart from the odd chest infection And a bit of dryish skin and only 5 months od. When do I apply or not as the case may be???
Post by pinkshell1110 on Jan 29, 2008 15:10:47 GMT
totally agree with lizzy ,karen apply now ,you can apply from 3 months old. if you get a form and get stuck just ask we will all be able to help you in one way or another love shell,charlie and jasmin xxxxxxxxxxxxx
Yes Karen I was told not to apply and wish I had earlier! Get LOTS of help filling it in though - I had to get all the different therapists to say how much they were seeing Caleb (though they "tactfully" forgot to mention how well he's actually doing - so it sounds like he's having alot more care than he actually needs) You have to really concentrate on the difficulties - extra appointments/ use of signs/ early intervention! Caleb is doing exceptionally well but we are putting tons of work into his deveopment so we went from that angle! Good luck!
Thats brilliant news Max - a mum at cdc didn't get hers backdated so she phoned them up to complain and ended up getting it backdated for three months. Have you phoned them up? xx
Karen, when you phone they put that date on the form then I think its 6 weeks that you've got to fill it in but they will backdate it to the date that you requested the form. Make sure you ask for the Childrens form as I got sent the adult one (twice in the end). I remember reading a help sheet from the dsa about filling in the forms and there was a bit on there about dry skin, make sure you say that you have to moisturise Lucy's skin every day and after baths ets. If she takes a while to eat, just exagerate a bit and think of the worst day you.ve had so far and use that. Are you in touch with the dsa? you could ring to see if they will send you the help sheet? Good luck xx
yay you got DLA too - well done, I dunno how it affects tax credits but I guess if you phone them up and ask we'll find out (must put that on my list of things to do!) Also if you don't work or only work part time you can get carers allowance which I'm going to do as soon as I give up my job (roll on the summer!)
i work part time and wil b goin bk 2 uni in sept. i rang bout tax credits she said wil increas slightly but my income changes yearly so sud increase good bit.god i sound like money grabing pregnant dog but it helps tho
Great news about your DLA Max, hope you get carers and more tax credits too. Can I ask a cheeky question? How did you diagnose Caleb's night terrors and what happens... am sure Jasmine has nightmares which I find really strange for a little baby, just wondering what to look out for.
My bro had night terrors and I recognise them. They scream and cry and thrash without waking, they will continue even if you cuddle them and tou can't really wake them up. They can go on for about 10 mins (usually only short though) and then he will calm - sometimes he opens his eyes or sits up but is not awake. My bro used to get out of bed and hide and things like that. Lots of kids have them but will grow out of it. I think I had them too and I still have very vivid dreams and nightmares.
yep kimmy has thoese although they dont last 10 min usually a fes minutes she seems to selltle after a while id sit rubbing her hand or something she opens her eyes sometimes i though she was awake then she would shut them and go back to sleep she scares the life out of me when this happens. mum mentioned that i also had them and still today id wake up dreaming and walk about and then waken and wonder how the frig i got where i as lol scares me sonetimes tho
Awwww, well Jasmine has done similar but only a couple of times, like you said Michelle, it's awful because you can't console them, Jasmine just seems to settle back into her sleep. Don't think I suffered from nightmares much as a child although I do now. I have sleep paralasys where you are dreaming and semi conscious but can't wake yourself up so the dream carries on and you can't move.... weird huh?
Yeh Michelle hun, sometimes it takes a few minutes though, once I was convinced that someone was breaking into my house and kicking the front door in, I must still have been dreaming but I felt as though I was awake but couldn't move. (sorry for digressing so far from your thread by the way Max, lol)
no probs Odiness! I remember having a really vivid dream when I was a child where frogs were coming out of the walls! My parents had to change all the decor in my room the next day as the green bits were upsetting me and i refused to sleep in there. I must have been about 2!!