|
Post by Rilith on Jan 24, 2006 20:32:40 GMT
Most of you know that Holly has AVSD and Fallots. Most of you are aware that we had a very rough time last year when one of Holly's operations went balls up and she ended up having emergency open heart surgery. I know some of you have had the heart scans done for your LO's and things have come back all clear. (which I am dead chuffed about) I feel that the heart issues sometimes get in the way of me enjoying Holly for the baby that she is. I have to remeber her meds, I have to remeber to take feeding syringes with me, if she pulls her tue out we have to stop in, we have to travel up and down to birmingham every month for hospital appointments... Sorry this is turning into I feel sorry for me thing... I'm gonna stop talking now
|
|
|
Post by Daddy2Josh on Jan 24, 2006 20:42:43 GMT
dont be daft! i really dunno how we'd cope if we had anything like that to deal with concerning josh. ur both stars! as well as lil holly!
|
|
|
Post by Rilith on Jan 27, 2006 13:23:34 GMT
Well we went back to brum last friday for her 1st post op check and all was well. They mentioned the narrowing of the artery again and they may need to do a repeat of the "small" op again. Forgive me if I cringe each time but ARGGGGHHHHH She is far too wriggly now for scans, so next month she has got to e sedated before they do the scans. We should have a better idea then of what and when. Hopefully we will get a date soon for the "big" op so I can start preparing myself
|
|
|
Post by Rilith on Feb 19, 2006 16:03:25 GMT
Well, only a few more days to go until her sedated echo I can honestly say I am scared, over the last few weeks we have needed to give her oxygen more frequently, cus she seems to be having more blue episodes. She still can't take a full feed cus she just gets so out of breath. I have a feeling they will be wanting to repeat the op very soon if not the small one then I think they will get a date soon for the repair op. Wheres the icon for pooping my pants???
|
|
|
Post by Jojo on Feb 20, 2006 9:17:20 GMT
Oh hunny,
I didn't realise it was soo soon!
I really hope it all goes well for you, and holly's heart is being good!!
I know you'll let us know how you both get on anyway, so good luck!!xxx
|
|
|
Post by Rilith on Feb 20, 2006 11:28:48 GMT
Will do JoJo.
AAAARRRGGGHH I'm in panic mode...LOL
|
|
|
Post by Daniella on Feb 20, 2006 12:35:27 GMT
dont worry rilith, you know we are all here for you to talk
|
|
|
Post by Rilith on Feb 20, 2006 12:47:26 GMT
Thanks hun, I just get myself into a right muddle before she has her scan. I think its a case of think of the worst and then I won't be shocked. (or something like that) She has had more blue does in the last month than she has in the previous 4 months Just a Mum doing the thing she does best.... Worry...lol
|
|
|
Post by Daniella on Feb 20, 2006 13:38:19 GMT
we all do worry!! i worried like hell last nite!! we were all in bed, adam was asleep next 2 me and josh was in his moses on the other side of me....i laid there, trying 2 get some sleep and then it suddenly dawned on me that i could only hear adam snoring ( ) so i looked in the moses and put my hand on josh's blanket which was wrapped around him from under the arms (he hates having his arms wrapped up as well) i couldnt feel his chest rising so i was there, slowly startinmg to panic, i then put my hand by his neck, only to feel that he was breathing after all! but he was so quiet!! that scared the hell outta me and almost had me in tears!
|
|
|
Post by Rilith on Feb 20, 2006 15:33:00 GMT
Horrible isn't it We have not long put Holly in her own room. And we have got the intercom on that loud we can hear the neighbours breathe. I hate it if I wake up first, I have to make Carl go check on her
|
|