Most of you know that Holly has AVSD and Fallots. Most of you are aware that we had a very rough time last year when one of Holly's operations went balls up and she ended up having emergency open heart surgery.
I know some of you have had the heart scans done for your LO's and things have come back all clear. (which I am dead chuffed about)
I feel that the heart issues sometimes get in the way of me enjoying Holly for the baby that she is. I have to remeber her meds, I have to remeber to take feeding syringes with me, if she pulls her tue out we have to stop in, we have to travel up and down to birmingham every month for hospital appointments...
Sorry this is turning into I feel sorry for me thing... I'm gonna stop talking now
Well we went back to brum last friday for her 1st post op check and all was well. They mentioned the narrowing of the artery again and they may need to do a repeat of the "small" op again. Forgive me if I cringe each time but ARGGGGHHHHH
She is far too wriggly now for scans, so next month she has got to e sedated before they do the scans.
We should have a better idea then of what and when. Hopefully we will get a date soon for the "big" op so I can start preparing myself
Well, only a few more days to go until her sedated echo
I can honestly say I am scared, over the last few weeks we have needed to give her oxygen more frequently, cus she seems to be having more blue episodes. She still can't take a full feed cus she just gets so out of breath.
I have a feeling they will be wanting to repeat the op very soon if not the small one then I think they will get a date soon for the repair op.
we were all in bed, adam was asleep next 2 me and josh was in his moses on the other side of me....i laid there, trying 2 get some sleep and then it suddenly dawned on me that i could only hear adam snoring ( )
so i looked in the moses and put my hand on josh's blanket which was wrapped around him from under the arms (he hates having his arms wrapped up as well) i couldnt feel his chest rising so i was there, slowly startinmg to panic, i then put my hand by his neck, only to feel that he was breathing after all!
but he was so quiet!!
that scared the hell outta me and almost had me in tears!