i want actually told as such.. i told the midwife in my room that there was something not right!! she went to get another midwife who took a look at joshua and they agreed that he had downs and sent him for tests.. they took him away to do it while i was being stitched up!! we had to wait until the monday to find out for definate and by then i was so concentrated on looking after josh that i had put it to the back of my mind..
we then had to wait 24 hours for the information the consultant had promised us
Cameron was down in scbu with bad jaundice..............he was yella!! LOL
When I was visiting, the paed and nurse from my ward asked me to go into this private side room.
I was then asked if I thought Cameron looked like any of the family and what did his dad and brother look like. They then aired there suspicions to be I shook like a leaf, trying to absorb all the info that was being thrown at me.
I was then told I had options and what did I want to do, I said see my boy
Post by pinkshell1110 on Aug 11, 2007 16:38:24 GMT
we were took into a room with the paed and a nurse and the paed just said i'm really sorry but charlie has got an extra chromosone 21 . they never aired their suspicions because they never suspected it, cos they originally suspected Edwards syndrome i think they were a bit peeved that it took them 8 weeks to spot anything other than his heart condition. but they were both very nice and positive and they asked if we wanted charlie in the room when they told us apparently it helps but we declined,we knew something was wrong cos when the other tests they did came back they just told us wherever we were sat ,so when we were taken to a room we knew something was wrong and didn't want charlie to be there while we were upset cos he really did seem to sense when were upset there was no negativity (sp) at all which we were really grateful for xxxxxxxx
georgia was in scbu as she needed oxegen and was jaundice they told me when she was about 9hrs old they were doin tests 4 chromosone abnormalities. That was on the monday and the wednesday night a midwife popped her head round the door and said 'oh your partners gone ill just tell the doctor 2 come back tommorrow (shes a horrible midwife and is known here 4 being horrible) so i told her no and i would get nick up asap. when nick got there the paed came in and said 'now we've got the results back and georgia isnt going 2 be your average bear!' i was laughin and cryin cuz i knew he was gona say she was downs next which he did and then he went on saying we were special for having georgia etc im quite happy with the way we were told the paed was lovely shame he was only a locum and went when georgia was 6 weeks!
Our doctor came to visit us 6 days after we had Lisa and asked to have a private chat with us, concerning Lisa.
I was worried that we had done something wrong as we were doing a lot of ebaying at the time and had a house full of boxes, Lisa came earlier than we had expected so the house wasn't quite ready for her lol!
Anyway, we went up to our bedroom as we had friends around, and my doctor was holding Lisa when she told us that she thought Lisa may have downs.
My instinct made me grab Lisa from the doctor and I burst into tears just cuddling her, I felt so sorry for her and knew that there was nothing I could do to take it away.
Asa took the news well, and was more worried about me than the downs.
We found out for sure a couple of weeks later, and I was fine by then, though it was still quite upsetting to know definitley.
Just after that I met Rilith on the internet, then along came Dan and Adam when they had Josh....and look at us all now, I have met soo many people!
Thanks to the internet, I managed to cope with my feelings a lot quicker than I ever would have without it.
I was told the day after Gemma was born. I was sitting on the Maternity Ward surrounded by other new Mums and a doctor just came up to me and blurted out that they suspected Gemma had DS. They didnt even give me chance to ring my husband, I had to tell him over the phone. They told me so many negative things and things that Gemma would never be able to do. Thankfully all a load of rubbish because Gemma is amazing and never ceases to amaze me. I havent ever come across that doctor again which is probably just aswell!! Debbie x
I knew when Rachel was lifted up on to my chest & I looked into her little face & she stared back with those lovely almond shaped eyes, after the midwives had tidied me up and michael & i were alone with her I asked Michael what he thought & he wasn't sure. so when the midwife came back in I asked if everything was alright with the baby & she aked me whay was i asking so i told her that i thought Rachel had Down's syndrome& then she told me that she thought so too & had already rung for a paed. doc. He was lovely & very gentle & caring with us , the next day when Rachel was on scbu, she had the blood tests taken & we saw the consultant, we were spoken to in a small sitting room & he gave us plenty of oppotunity to ask questions & was very positive.We felt we were dealt with very well by the doctors & most of the midwives . Our care & Rachel's care has been good so far....Susan
When George was a couple of hours old I started to notice something about his eyes but couldn;t put my finger on what it was. When we were transfered to the ward I kept looking at him and when he had his eyes open I started to wonder if he'd got downs. The midwife there did a few checks on him and said that he was a bit cold and to put a hat and cardy on him. I noticed her look at the palms of his hands, I knew then that she'd seen what I'd seen. Wayne came back then and while I was putting George's cardy on another midwife came over and made out she was helping me with the cardy but she also looked at his palms. I felt sick then as I just knew. I said to wayne did he think George had got downs but he said no he;s just all squashed up from being born but if I was really worried I should ask the midwife. I did ask her and she said she would get a paed to come and see us. They came when George was 7 hours old and agreed that he did have some features of downs so they would do blood tests the following morning. An upsetting night followed as George's temperatue kept dropping so he went in an incubator and he couldn;t feed so after trying to syringe feed him he was taken down to scbu to be tube fed. He ended up staying there for 11 days. We got the confirmed results back when George was 3 days old. Can;t fault the staff that looked after us all, they were brilliant in scbu.
I had a planned C section and I had also signed consent forms to be sterilised. When Jack was born he was handed to me in a towel and i asked the midwife what weight he was and she replied that they did not weight him which I said to Gordon at the time was funny as the had weighed Ben before they had given him to me.
A few minutes after that one of the midwifes called Gordon to another room and i knew that something was wrong i actually thought that Jack had died. The midwife told Gordon that she thought that Jack had DS and they would not be doing my sterilisation. He came back and told me that they would not be doing the sterilisation as the baby had ds. The doctor who was doing the c section looked up as she did not even realise that the baby had DS. She then wanted me to make the decision if I wanted to be sterilised or not at that stage i was in another planet and did not even know my name let alone make a decision.
Jack was taken from me when he was 3 hours old as his temp kept falling and he was put in NNICU on oxygen and antibotics he was there for 3 days. For the first day or so I could not bring myself to look at him i hated the thought that he had ds and that other children would pick on him.
Now nearly a year later I see that he is going to be the bully and no one will pick on him. We would not part with him for the world. All three of us are mad about Jack.
I had a feeling through my pregnancy that things werent right, I remember seeing a little Downs girl when I was about 7 months pregnant and remarking to my Mum how cute she was, my replied she was horrible :-[ I said what if I happened to have a baby with Downs and she said you wont as your test results were very low.
As I gave birth to Sarah I asked for her to be put on my tummy, as soon as I saw her eyes I knew, my husband went to get me a cup of tea and I said to the Midwife 'Shes got Downs Syndrome hasnt she' she replied she also though she had and the doctor was on the way. Sarah was taken away for blood tests and when the results came back the next day the Paediatrician sat on my bed and confirmed the results and said that Sarah would never learn to read or write, use a knife and fork or cross the road unaided. Sod you I thought I will prove you wrong as I have, she is now 13 and has a reading age of an 11 year old, she writes wonderful stories in writing you can read, uses a knife and fork and walks to school and back crossing a road on her way ;D
Hi Jane, its so nice to hear that Sarah is doing so well. Gemma is only 20 months old but I was told such negative things and so many things she would never be able to do. Infact Gemma is doing fantastically well she is crawling and cruising around the furniture, in fact she is so mischievious but I wouldnt have it any other way. She is the light of our life and loved by everyone. What right do these doctors have to say these things to us. They know nothing. I hope Sarah continues to go from strength to strength, she sounds amazing. Debbie xx
We had no idea Danny had downs throughout the pregnancy he was born on the Saturday and it was the Monday morning they took us into a private room and said they would like to do some chromosone tests and we would find out the results out on the friday the staff was great Danny was in special care for a few weeks but only because he was premature
I thinl we were going out somewere and my mum was packing gemmas bag or something and she told me then and there the biggest shock was nowing she had to have an opp at age and she has such a tiny heart..
I had just had Alex and they had just finished "tidying" me up. 20 minutes after he was born a midwife came in and said in a very matter of fact voice, "babies have lots of different characteristics and individually they mean nothing, but if you add them all together they can mean something. We think your baby has DS" She then went on to show us his crease on his hand, his sandal gap, his ears and his eyes. She then said I will leave you to think about that for a few minutes and walked out. My husband just about passed out and I was in shock. She then came back and told us about the blood test. It was only when I was in the shower about half an hour later that it sunk in and I broke down. The paed never came to see us until about 5 hours later so we were left in limbo. It was a horrible experience and the midwife had no tact or compassion for us. They then shut us in a private room aqnd left us to it. They never gave us any leaflets or info until the next day, it was left to my hubby to go home and do research on the net. They then asked us if we still wanted to keep him! I was shocked, it was like they were saying if you don't like your Xmas pressie you can take it back.
We were told a couple of hrs after Saul was born. We were put in a side room and the midwife said she was getting a Peadiatrician to see us. When she came back we asked why and she just said 'we think your baby has Downs syndrome, ill leave you to talk'. We didn't see anyone else for a over an hr till my mum and brother came to visit. My mum had just come onto maternity and asked at the midwives desk where to find us and this midwife just turned around and said to her 'they're in there but they're a bit upset we've just told them their baby has downs.' My mum has always been so annoyed she was told like that and their total lack of compassion.
i was told the think breaylyn had downs when she was 2 days old i was discharged from hospital the next day and asked to bring her back in a weeks time to have blood tests after that we wernt told the results till a week later when they took it for granted we knew which we didnt as she showed none of the usual signs, she shows it more now she is older or when shes upset
Josh was my first baby.. it was christmas day when i had him at 7.22 am . We were kept in as Josh had a low birth weight and on the second night i had problems breast feeding him. the mws took him away and said it may be because we were both tired.. they came bk a few hours later saying that the other babies were keeping me awake and i was to have my own room. instantly i new something was wrong!!(there was only 2 other babies on the ward and they wernt crying....) they told me that they would bring Josh bk in a few hours. the next morning they brought him bk and said that a consultant was coming to see me but they wouldnt say why!! i started to panic as i thought he was going to die or something. 9am mws swap shifts and the new ones came to see me, at this point my husband was there and he nagged them until they told us why the consultant was seeing us.. They said that they thought Josh was downs and that they needed the consultant to confirm this. both Dave and i looked at each other sat back and said is that all. they looked shocked by our reply so Dave said is he going to die , the mws said no and we both said there you go what was all the worry over. i stopped crying and cuddle Josh like u wouldnt believe. The cunsultant came in looked at both Dave and myself then looked at Josh and said i dont know, normally i can tell straight away but with Josh i dont know... Josh had to have the blood test to confirm that he was infact Downs and we had to wait three long and hard weeks before we had the results.
Elliott was born on his due date weighing 9lb 4oz. Had bloods done during pregnancy and they came back with 1:27 chance of him having DS. When he was born hubby said that he thought he had DS but all i could see was my beautiful baby boy. When the mid wife came back into the room she told us very gently that she thought he showed some signs of having DS and was going to call the paeds to come and check him over too. All we were concerned about was his health, the fact he has DS has never been an issue with us. When hubby went home to bring our daughter down for a visit I think some of the docs thought I was in shock from the way I took the news, but to me I had just given birth to this perfect, healthy, gorgeous son so there was only cause for celebration and not for doom and gloom. The first person we told was our daughter when she came to visit, we wanted to assure her that it was ok, and that any questions she had would be answered. She loves her baby bro to bits except when he's pulling her hair lol xx