Just wondering if anyone get's respite and what criteria you have to fulfill in order to get it?
I was referred to a social worker by the LD nurse as she thought i'd be entitled to something but after a visit from SW it appears that i'm not. The only thing she could suggest was after school clubs for Brodie or a holiday playscheme, not really much use or what i had in mind! To be honest the visit was a total waste of time and i'm feeling a bit disappointed with the whole thing.
Be interesting to hear other peoples experiences......
I asked for some restbite just after I had Isobel and when Henri broke his leg, we were reviewed and they said I should be able to get some help. But in the end what they were sugesting wasn't suitable, Henri doesn't cope with changes and they wanted a childminder to come to my house to look after Henri but 1. how is that restbite? 2. Henri wouldn't goto the carer if I was in the house and 3. I'm not keen on strangers in the house. So in the end they wrote to me and said they couldn't help. Axx
We were given respite when Holly was tiny after her boo boo op but she was very very poorly at the time though.
We do still have the respite placement now (well for now) but she is having a brilliant run of health ATM that we feel a little fraudulent in using it when there are more poorly kids than Holly out there, but we will make use of it again when she starts to go down hill again... cus for Holly it will happen, its just a matter of when
I have a form of respite for harry through a scheme called direct payments. We were assessed by a social worker and originally given 5 hours a week, it was meant to be so that i could spend time with my husband but then my marriage broke up (long story)... anyway i still continued with the 5 hours a week and i use the time to do stuff with my other son Sam. Recently harry's behaviour has become more difficult so they've increased the respite to 10 hours a week with a view to saving up the time and using it more in the holidays.
Its a different kind of respite i think to what Holly would have, it involved finding a carer who then cares for harry either in her home or she takes him out or can babysit at my house.
To be honest to start with it took a while to set-up, but i had help from a lady working for direct payments. We found a carer and she is lovely with harry, it works really well, it's quite flexible and i just pay her for the hours she does (social services pay the money into a bank account & i then pay her). I'm sure direct payments is a nationwide thing, maybe worth asking the social worker Tina xxx
Thanks for all the comments, it's interesting to hear what other peoples experiences have been. Had call from Social worker today to say that she was closing Brodie's case as there was nothing she could offer, must have been the shortest case in history waited 8 months for an appointment, saw someone for an hour and now that's the end of it!
What !!!! Pardon me !!!! Is that their response to a request for help ? My God i can't believe that - so why did they think you were referred to them ? - just for fun !!!
Have you told the LD nurse ? I hope that she is more use than the SW was.
I remeber readin somewhere that Gov was suppose to be releasing more money for respite - will try to remeber where. Respite is not just to give you a break from Brodie ,but to allow you to focus on the other boys etc I'm so mad that they've opened & shut this......... Sorry rant over xSusan