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Post by sarah on Jun 22, 2011 21:26:12 GMT
Hi all - just wondering if anyone has had any experience of this...everything's been ticking along nicely - Daniel's quite a healthy bod, so we were very surprised when we had a letter saying that he should have some blood tests as his school height check up showed he has fallen on the centiles for height. They also stated that 'although he is not small for a child with DS, he isn't growing as fast as we would like...' SO he's had tests for caeliac disease, thyroid, full blood count (used for leukemia) and other ones to do with his liver and gut and a few others I didn't understand. I'm probably overreacting, but my mind is a whir - I know its best to be safe than sorry, and they are probably covering all bases but...I'm just really surprised as its never been mentioned in any of his regular paediatric appointments. Ive tried to ring the Dr, to help explain, but she's not been available. Has anyone's children had something picked up through a blood test?? HELP! Thanks! xx
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ian68
New Member
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Post by ian68 on Jun 23, 2011 11:47:49 GMT
sarah gemma has blood tet before every pead appointment for caeliac and thyroid she has got an underactive hyroid which she is on levythyroxin so maintain it may be the answer to daniels height xx
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Post by sarah on Jun 23, 2011 14:44:27 GMT
Thanks Ian. Did Gemma have any symptoms that indicated her thyroid or was it just the blood test that picked it up? Cheers! x
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ian68
New Member
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Post by ian68 on Jun 23, 2011 14:52:30 GMT
they picked it up in her blood test she been having them since 6 months she has it checked every four months its prob why she still quite small compared to the amount she eats xx
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Post by karenh on Jun 23, 2011 15:13:39 GMT
Hi Sarah
Only just seen this - im finding it really difficult to keep up on FB at the moment - and keep forgetting to check here.
Im sure they are being extra careful, but i would worry nontheless also.
Lucys hypothyroidism was picked up on a routine blood test - she has levothyroxine daily unfortunatley we have struggled to get the dosage correct, which became a bit of an ordeal - although fingers crossed that seems to be ok.
The only other thing I can think of does Daniel use an inhaler? Lucy uses the blue and brown one, and I was told this could have an impact on her height, just a thought... Let us know how things go take care xx
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Post by sarah on Jun 24, 2011 15:24:38 GMT
Thanks Karen - no he doesn't have an inhaler. So weird all these little things that pop up for our children! Just when you think you know it all...!!! Oh well, just got to cross fingers and wait and see. Thanks all xxx
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Post by sarah on Jul 2, 2011 10:03:51 GMT
All came back fine! The letter said that it may have been due to a difficulty in measuring him properly.... so a lot of worry for nothing!! Although V pleased to know Daniel has a clean bill of health
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Post by tina79 on Jul 8, 2011 11:58:29 GMT
That's a relief, glad all is well. Super cute new picture of Daniel by the way x
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