Hi Lizzy, no we never got that far, but Leo has reflux still, we managed to get it under control with medication. Sorry cant offer any advise but can certainly understand, I used to get so fed up with our pead saying "it will get better when hi sit/is more upright, and so on" it never did, we did buy a different high chair though and that really helped, he was just in a bog standard one, but he sat kinda slumped in it due to poor muscles in his trunk, so bought him a svan one, its like the tripp trapp but cheaper, the way its made makes them sit upright, so there was less chance of food coming back up, we got money from our social work dept for it too so only cost us £15.
Thats what his paed said, the more upright he is!! But she fails to realise camerons way of getting about is crawling.
Hes not one for sitting for any length of time, however we don't let me out his highchair for at least 10-15 mins after meal. Doesn't make a blind bit of difference, neither does carobel or infant gaviscon
I don't know if its the same but it sounds quite similar to the video flouoscopy that Thomas had a couple of weeks ago. Basically Thomas was strapped into a special chair and fed barium liquid through his normal bottle. He drank it no problem even tho its supposed to taste foul! It can be put into juice or food tho to make it taste a bit better. Whilst he was drinking it a machine was xraying him at the same time and you could basically see him swallowing the barium (it shows up really dark) on a tv screen nearby. It wasn't at all invasive and Thomas was absolutely fine with it. It was quick too! I'm sure little Cameron will be fine with it. I hope this helps a bit. xx
Thomas went because they thought he was aspirating liquids and having a load of chest infections as a result. The xray showed that he is aspirating because his swallowing reflex isn't working properly. They have put him on thickened liquids to stop this happening and so far he is a lot better. We use Thick & Easy thickener which is put into his milk and juice. I do know a little boy with reflux that also is on Thick & Easy to stop the reflux so it may be that they give Cameron that for a while. Its dead easy to use and doesn't taste of anything so once they are used to it it makes things better straight away.
well Leo started on domperidone, it was a godsend, I dont know if there is a minimum age for it, but worth mentioning, you have to give it 20 mins before a meal which was a bit of a pain but worth it. May be worth thinkin about the highchair thing, speak to OT about it as they have some chairs here that they loan out may be the same where you are, it made a difference for Leo
hi all, Gabriel has suffered with reflux since birth and has had gaviscon and retidine ( sorry bout spelling) and the 'stay down' milk but nothing has worked! like Lizzy we were told it would get better once they started solids etc.It has seemed to get a little better but you still can't get away without a bib! He also suffers from like' black outs' where he holds his breath goes all floppy and loses consciousness for a few seconds (scary as hell)ever since he was about 4 months old and only now has been referred for tests as no-one seems to know why,at first it was put down to reflux and the acid burning as it came up,but now they aren't so sure!
That does sound scary! Ranitidine is what Leo is on now, but when he was little we used both that and the domperidone, the domperidone (motilium) helps the food pass through the stomach quicker and the ranitidine (zantac) acts like a little raft at the top of his stomach, they in combination help to keep food down where its supposed to be, found this link too for the highchair if your interested: www.thatcuteage.com/2-Feeding/c96p1-Seating/p660-Svan-Adjustable-Highchair It is really frustrating when they keep telling you it will get better, and it doesn't Leo has just been weaned off his domperidone but still needs the ranitidine although the dose has been reduced, so there is hope for you guys...
Ditto what Vicki said, Harrison had this when he was younger and he wasn't too bothered about the test (which is unusual for him because he normally gets very cross indeed!). His speech therapist showed me the video afterwards and you can see really clearly what's happening with the fluid as it goes down. Harrison had gaviscon in his milk + domperidone + omeprazole pretty much from birth, now he's just on the omeprazole. I've found the reflux definitely improves as they get older and stronger and start moving around more. There were times when I thought he'd be on the reflux meds forever but in the past year he's improved loads. We used to leave him in his high chair after eating too but once he was crawling we found we didn't need to. Also, once he was eating more solid foods like toast etc I noticed the reflux reduced as he could keep these down easier.
Hi Lizzy, Thomas has reflux too and 2 weeks ago he went into hosp to have a tube up his nose into his tummy to see if he was producing too much acid, he had to have it in for 24 hrs and boy did he scream when they did it. This friday just gone he had a barium meal, at first they tried to give it him whilst he was lyeing down with a beaker, it went everywhere and he would not take it. I asked if i could put it into a bottle and he drank the whole lot no bother at all, we were in there about 15 mins the only thing he didnt like was the machine that they put over him for the scan but apart from that it went ok and we get results the end of the month. I hope they find something in a way and they are able to stop all the sickness then maybe he will put on a bit of weight. Debbie