We have Rachel's appointment with our local CDT tomorrow morning, we're really keen for them to see how well she is doingsince they saw her 6 mths ago. Going to push about Portage and their specialist playgroup - think she would really respond well now to that sort of support. xSusan
we call our CDT the mot centre...lol good luck and show 'em Rachel...take stuff you use at home coz sometimes when they use there own toys at the centre littlens draw a blank...i have found this so thought i would pass on the tip...hope you dont mind
Rachel was a star this morning, she was a bit phased by a medical student who shadowed us through her MOT ( we call it that as well), but everything was good, no assessment by S& L therapist as she was off sick but she is making lots of different noises so not too worried there. As a training model Rachel's not so good for medical students, no single crease, no small ears, none of those things that you're suppose to be able to see in the iris part of their eyes, smallest finger is not exceptionally short but it does have the bend& she does have the sandal gap on her feet. Poor boy ( he was the same age as my eldest son I discovered) was really put through it by the consultant. When we first arrrived he had to ask me why we had come as he hadn't ever seen a baby with Down Syndrome, & he didn't spot it just by looking at her. Hopefully he'll get alot more experience . Any way back to Rachel, consultant very pleased, would say she was age appropriate in most areas just abit behind on motor skills . Didn't realise we hadn't been refered to Portage but we have today and hopefully we should hear very soon bout place at Theraplay (playgroup) as we are near top of list. So next MOT at 18 mths.
Ooooh Caleb has the physical symptoms (or lack of) as Rachel and we've confused several trainee Drs and stuff now - and lots of the Mums at our special needs Mums and tots group. Kind of nice to know that it's not easy to see - for his sake, he'll get judged less I guess.