Post by Railop on Jul 29, 2008 18:01:51 GMT
Hello, my name is Sam and I am 39 years old, I was reccomended to join this site by tantalizintina so I hope you don't mind.
A bit about myself: I have 3 children 2 daughters aged 19 years and 15 years and a son aged 3 years. I am 14 weeks pregnant now. In Dec 2006 I had a missed miscarriage and in May 2007 I lost identical triplets. It has taken us a year to get pregnant again.
My partner and I had discussed the triple test and the nuchal fold test and decided against having them. When I was pregnant with our son I returned a high blood result with the triple test. This led us down a path of decisions and anxiety that I didn't want to repeat again. If our child has any disability we would not terminate.
I had a routine 12 week scan last week and unbeknown to me they measure the nuchal fold anyway. I knew something was wrong after having had several mc's you know when they are taking a long time to scan you. I could see the babies heartbeat so knew it wasn't that. After a few minutes the sonographer said she was very sorry but we had a nuchal fold of 5mm. I asked if I could have a photo of our baby as we hadn't been offered one and she said "do you still want one", I was a little surprised at this response. She then set about trying to get someone to speak to us urgently but was unable to get someone at our local hospital or the larger hospital several miles away.
We left knowing that our baby could possibly have a chromosome disorder due to the measurement. The next morning I had a phone call from the fetal specialist midwife who said she was referring us to Bristol Fetal Medicine Unit for further tests. We had an appointment for the next day, again she said she was sorry. At this point alarm bells were ringing everything was happening so fast and everyone was being too nice.
We arrived in Bristol and had a further scan our baby has a cystic hygroma and generalised oedema. We have been told there is a 70% chance our baby has Downs or Turners Syndrome. There is a high possibility our baby will die before 16 weeks as it is very poorly. We were offered termination and a CVS both of which we turned down. We have a further scan appointment in Bristol on the 11th August where we need to decided if we want an amnio or not.
Has anyone else had similar experiences to us? Thank you for reading my long post.
A bit about myself: I have 3 children 2 daughters aged 19 years and 15 years and a son aged 3 years. I am 14 weeks pregnant now. In Dec 2006 I had a missed miscarriage and in May 2007 I lost identical triplets. It has taken us a year to get pregnant again.
My partner and I had discussed the triple test and the nuchal fold test and decided against having them. When I was pregnant with our son I returned a high blood result with the triple test. This led us down a path of decisions and anxiety that I didn't want to repeat again. If our child has any disability we would not terminate.
I had a routine 12 week scan last week and unbeknown to me they measure the nuchal fold anyway. I knew something was wrong after having had several mc's you know when they are taking a long time to scan you. I could see the babies heartbeat so knew it wasn't that. After a few minutes the sonographer said she was very sorry but we had a nuchal fold of 5mm. I asked if I could have a photo of our baby as we hadn't been offered one and she said "do you still want one", I was a little surprised at this response. She then set about trying to get someone to speak to us urgently but was unable to get someone at our local hospital or the larger hospital several miles away.
We left knowing that our baby could possibly have a chromosome disorder due to the measurement. The next morning I had a phone call from the fetal specialist midwife who said she was referring us to Bristol Fetal Medicine Unit for further tests. We had an appointment for the next day, again she said she was sorry. At this point alarm bells were ringing everything was happening so fast and everyone was being too nice.
We arrived in Bristol and had a further scan our baby has a cystic hygroma and generalised oedema. We have been told there is a 70% chance our baby has Downs or Turners Syndrome. There is a high possibility our baby will die before 16 weeks as it is very poorly. We were offered termination and a CVS both of which we turned down. We have a further scan appointment in Bristol on the 11th August where we need to decided if we want an amnio or not.
Has anyone else had similar experiences to us? Thank you for reading my long post.