I've been reading this site for a while now and finally feel I'm ready to join. I have 3 children - 2 beautiful girls called Eden and Camryn aged 9 and 7 and a beautiful boy called Carter who turned 1 last week. Carter has downs syndrome and has fought for life from the day he was born He spent his first 5 months in and out of intensive care on ventilation due to pneumonia and bronchiolitis caused by a large vsd and asd. It was a long wait but he was strong enough to have heart surgery in February this year which was a huge success. In July he had a stomach peg fitted due to reflux and general feeding problems which has also been a huge success and he is doing great now. Through it all he has a smile that would light up a room. He has changed our lives, and our family and friends lives, so much all for the better and given us a whole new perspective of life. When we explained to our daughters that he had down syndrome they said 'so he needs us to help him' we said yes and they said 'that's fine he's our bro and we love him!' Say no more!
I'm Donna and have been married to Mark for 13 years. We have 2 children Caitlin who is 12 and Elliott who will be 1 on the 17th of November. Elliott was born with ds. We're so lucky Elliott has no health problems and there's not a day that that goes by that I count my blessings for having him in my life. Caitlin loves him to bits, and he her. I know what you mean when you say he has given you a new perspective of life, my little one has too. I'm so pleased that Carter is now doing great, it must be a huge relief for you all. Looking forward to getting to know you and your family, take care, Donna x
Post by tantalizintina on Sept 29, 2008 11:37:53 GMT
Hello there & welcome 2 this fantastic site xx 1st of all i've gota say ur thread as bought tears 2 my eyes..how wonderful of ur daughters 2 say that...very caring young ladies they must b... Well i'm Tina, i live with my partner geoff and my eldest son dan.. I have 3 kids, dan 18, liam 16 (who lives with his dad) and our special 1 Lewis who is 8nhalf months old! He too has been thru alot but he's a fighter all the way... I've had lots of advise from the mom's n dad's on this site..@ 1st i was asking 4 help daily...lol, We knew that Lewis had ds b4 he was born so i'd joined this site b4 hand and was quite prepared 4 his arrival.. again thanks 2 the moms n dads on here.. Did u know that carter had ds b4 he was born??? Anyway i wont ramble on... looking 4ward 2 seeing pics of ur kiddies and chatting lots Tina xxx
Post by pinkshell1110 on Sept 29, 2008 12:09:16 GMT
hi there and welcome to this fab site i am shell mum of 6 charlie being number 5 and my special man he is 4, he too had an asd and a vsd for which he had the surgery at 9 months old,he also spent his first few monbths of his life in hospital mainly due to being 11 weeks prem, but then due to his heart and was then diagnosed with chronic lung disease, and finally diagnosed with DS at 8 weeks old. like Carter throughout all this he has always had a smile on his face and managed to light up a room ,and he has just always made everyone fall completely in love with him i look forward to seeing some piccies and hearing more lots of love shell,charlie and jasmin xxxxxxxxxxxxxxxxxxxxxxx
I'm Claire, mum to Esme age 8 and George age 2. George has ds and also had a heart condition - a complete AVSD. He had his surgery at 6 months old (21st Dec so spent his first christmas in hospital ), but since then has come on brilliantly and is now only on 12 monthly heart check ups. Like you say he has definately changed all our lives for the better and seems to have a nack of making everyone love him. I had tears in my eyes reading what your daughters said about Carter, its lovely that bond that they have isn;t it. when we told Esme about George having downs she said 'he's still the cutest brother' and just loves him to bits. I look forward to chatting to you more and hearing about Carter and your girls and seeing some pictures xxxx
Hi again and apologies for not being in touch before now but my home computer has been playing up and only letting me on late at night - I'm sure you've noticed! Apologies for not introducing myself earlier but my name is Andrea and I've been married to Chris for 11 years. Thanks so much to everyone for making me feel so welcome and I must admit for some reason I was very nervous about dipping my toe in the forum for the first time. I think maybe Carter's health has taken such a priority - and others that you meet in the hospital environment -that I haven't had a chance to look further beyond that. Don't get me wrong, Chris and I have fully accepted Carter has ds and we wouldn't change him for the world, far from it. But now his milestones are hopefully slightly more in our hands, if that makes sense, we want to do everything in our power to help him. Although I think our two girls and boxer dog are doing a better job! Anyway about Carter, he was born at 11.09pm and we were told he might have ds at about 4am. It was a huge shock but looking back now it all sort of adds up. That's history now and I'm really looking forward to getting to know you all and sharing in your tears and triumphs. Sorry I've been rabbiting on for ages now but can someone please tell me how to get photos of my family on this site - the pictures of all the children above are gorgeous and melt my heart and I can't wait to share mine! Andrea, Chris, Eden, Camryn and Carter xoxoxoxoxoxo