I have never claimed for this for Racheleven though she turned 3 in jan . Now I'm a bit confused as to whether it's worth trying as all i've read says they could get awarded the higher rate moblity( if they meet the criteria) but that between the ages of 3-5 you can't get lower rate mobility.
Well to be honest I can't see Rachel meeting the criteria for high rate , as she walks , she does need reins / hand when walking by roads as she does tend to wander , i do have a maclaren major that we use cos she does get tired but no real health issues , she walks upstairs,slides down . They're sending me a form but I don't know if its worth filling in .
Hi I get high rate mobility for Henri he can walk but not very far and it's not just on walking it's how they behave in public areas too, Henri will freak if he hears a loud noise and tends to bolt, has she aware of danger crossing roads, strangers can she communicate with others if she signs then others will struggle to understand her also has she got behavioural issues, will need constant watching on play equipment again fear of danger will she just jump of the top of a climbing frame.
If you want more help let me know also the DSA website has some helpful notes and cerebra.org.uk
We also get higher rate. Holly walks, but gets very tired with her poorly heart, and Like Henri if startled she bolts or if we dont have a pushchair she is too heavy to carry and when she trips she wants to be carried.
hi Susan, we get the higher mobility component for George but the care component went down to middle rate. When I filled the forms in George wasn;t actually walking so we got it without any probs and I haven;t told them that he is walking now, am I meant to??? I was reading on Bounty that someone had been turned down for mobility but it was the way they had worded something on the form. They said their child wouldn;t walk very far not that they 'couldn;t' walk very far. I think you;ve got to be careful about things like that really and think of all the negatives and lay it on a bit. Its horrible filling in the dla forms isn;t it, get some help from DSA though xxx
i get high rate mobility. josh is almost nine now and he walks but gets tired easily as he has hyper mobility in his hips and a heart condition. but he also has no sence of dangour. he wonders off and cant be left alone outside. if he gets lost he cant tell anyone who he is or where he is from ect so that is why we get it.
its worth a try hun. if they say no they say no but its still worth a shot xxx
I got turned down for the higher rate of mobility when Shannah got her renewal forms and I honestly think it was not the right decision. I just had the dreaded 5 year old renewal forms drop on my mat so I'm going to try again. Shannah can walk and has been walking since about 17 months but she constantly falls over as she has low muscle tone and walks very stiffly as her knees are hyper mobile and her hips aren't very strong and in terms of behaviour she is a nightmare! She will either bolt off for a few steps before she inevitably falls or she will sit down and refuse to walk. If I manage to get her into a pushchair which she is really too big for a lot of the time she will just scream non stop. If she's round large groups of people or there are certain noises (for instance I can't take her into a fair or an arcade or anything as she flips out or even on a bus!) she will just freak out and seems to be terrified so I don't like to put her through it too much. I can't put her in reigns as she just swings off them and she will only hold my hands for a few mins before she starts pulling off them as well. She has ran out into the road before although thankfully there wasn't any traffic on it. Basically I have younger children as well in a buggy and I can't take them all out together even with the help of another person because she is that difficult and so much of a danger to herself.. it gets me quite depressed at times. I know other families that have children with DS who have exactly the same problems and they managed to get the higher rate for their children where we didn't so I think it's just a matter or who gets to assess your form. If we don't get it this time I am probably going to appeal because looking at the criteria I believe Shannah more than qualifies for it. My care element got down rated last time too and I don't agree with that either as she still has lots of night time needs .. maybe more so than when she was younger. I honestly believe it just goes on who gets your form.