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Post by cazza1uk on Aug 29, 2006 15:14:16 GMT
hi my cousin recently had a baby she said to us she didnt have the test when she wa pregnant to find out if she had a higher percentage of having a child with downs syndrome. my cousin denies that the baby has it and says shes not going to tell people unill they ask, as soon as the baby was born i noticed she had downs but my cousin still refuses to belive it and doesnt think she will have it "bad" when shes older, the baby is very bright and alert but im worried about my cousin. did any of you mums feel the same as she is when your babies were born and you found out they had downs syndrome.
thanks in advance
Caroline
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Post by Daniella on Aug 29, 2006 17:35:27 GMT
Hi caroline - when Josh was born Adam and i felt a bit similar - we knew the downs was there but we didnt want to talk about it - we felt that we wanted to enjoy Josh as a baby before we worried too much about his future.
We knew that we had the full support of both our families, friends and colleagues in work and we feel now that is what helped us through the first few months - it is quite common to feel denial and guilt - it is true what was put in the magazine - you grieve for the child you thought you were going to have.
in regards to not telling people until they ask, that is also a normal reaction - i personally didnt like telling people - i am only just getting my head around telling people 'i have a son and he has downs' just give her time and she will come around soon.
finally, in terms as to what the future holds, you cant second guess downs as there are different spectrums. all we can say is to keep interacting as much as possible and let her develop at her own rate. she will reach the milestones, just a bit slower than other children - and whatever you do, dont treat her differently, treat her as you would do any other child.
hope you find all this helpful and tell your cousin to feel free to just come and browse and she can talk whenever she wants to - as i said a bit earlier - we just wanted to get to know joshua before the downs
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Post by lizzymd² on Aug 29, 2006 18:22:55 GMT
oh yeah, my father in law, every time I see him, he has to talk about how camerons alright and not to badly affected, which is really irritating, he didn't take it well at beginning, i think hes kidding himself on, i talk about my friends little girl born on same day and he constantly wants to know how cameron fairs against her. i know we are going to have disagreements in future as he would like cameron to conform and go to mainstream everything but that maybe not be whats best for cameron and I will only do whats best for him, i.e special needs nursery.
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Post by nikki on Aug 29, 2006 18:41:42 GMT
my nana is exactally the same shes always sayin theres nothin wrong with georgia and that shes not downs and shes 2 now!!!! all the rest of the family seem 2 have takin it fine apart from my mother in law who is always researchin into downs i think shes become obsessed lol.
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brandy
Junior Member
Posts: 194
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Post by brandy on Aug 29, 2006 19:25:26 GMT
the only real support my husband(brian) & myself get is from my sister.other than that everyone else in the family say hes just a "normal" boy.no-one in the family signs to him except me & brian they all say" he'll talk he's just lazy"!!we get on and do the best for brandon that we can & me and brian make sure we are enough support for each other.
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Post by Jojo on Sept 5, 2006 21:21:43 GMT
We didn't know Lisa had Downs till she was 6 days old, as she didn't have the obvious signs.
She is very bright in many ways, but you can see the downs in her now.
All my family have been very supportive of it, and I have given them most of the information they need.
I suppose what I am trying to say, is that we all know she has downs, and none of us are trying to hide from it, at the end of the day, it has made Lisa the girl she is today, and we all wouldn't have her any other way.
She is adorable, and everyone who knbows her can see that.
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