Hi Laura was seen by the Cardiac consultant on Tuesday and they are really pleased with her so far. The holes in the wall of her heart are quite big and her asd needs split in 2 but they had expected her to have needed medication or to be showing some signs of heart failure but nothing yet. Apparently babies with DS hava a higer pressure in their heart chambers and this is probably what has kept her so well.
They are going to schedul surgery in the Royal Belfast for early Jan which is a lot earlier than we had expected but at least all being well she will be over it by the summer.
Very scary and hard to image but we will take it as it comes.
Hi Cate, George was 6 months too when he had his op, he went in on Dec 20th, had it done on 21st and was home on the 29th. Its amazing how they just seem to bounce back, we'd be there for weeks I'm sure. If ever you have any questions feel free to ask. Take care xxxx
Post by tantalizintina on Oct 13, 2008 16:45:37 GMT
hiya cate' laura will b just fine huni.. unfortunately her mommy n daddy wont.... lol.. lewis was 10 weeks old when he had his heart repair,, he's 9months old now and he's doin real well x goodluck 4 the future xxx
we met the surgeon in the Royal Belfast on Tuesday laura is on the waiting list the op is still hoped to be beginning of January. He said they think that she hasnt displayed any symptoms of heart failure yet as her lungs are preventing the blood flowing into her lungs but they wont know until the surgery but the sooner its done the better.
Has anyone heard of this?
They will decide on a Thursday and bring babs in for bloods on Friday and back on Sunday for op on Monday. Im glad as we dont have to think about a particular date, scary stuff.
hi there, my son carter had his heart surgery in the royal belfast for an asd and vsd repair in feb 08. His surgery was brought forward as he was constantly going into heart failure and spent his first 4 months in and out of picu in the royal . But he is fantastic now and his surgery was a huge success. It is a very scary time but all i can say is Laura is in the best possible hands with Mr Gladstone who is a genius and his surgical staff and the staff in the clark clinic are amazing. I hope everything goes really well!! andrea xx
Im from Bangor, to be honest i havent really looked for any group etc's except dsa as his health was so bad im just so glad to have my wee man home, he's thirteen months now and just a little treasure...We are going to the new parent weekend in january with dsa, but im sure thats the last thing on your mind with laura's surgery coming up!!
We got the call today. Laura will be having her operation on Monday all being well. We have to go to the hospital tomorrow for blods etc. then in on Sunday. Will let you all know how she goes. Scary. Cate
mr gladstone did corys op too..i actually kissed the man when he came out and told me cory was fine i wanted to slap him before as he didnt mince his words and was very blunt but i now know looking back it was for the best..cory was 6 weeks old when he had avsd surgery. all the best hope all goes well and when they say go shopping..go..sounds weird but it does help as the time goes a lil bit faster..xx