I recently read 'A Roadmap to Holland' written by Jennifer Graf Groneberg about the first 2 years of son Avery's life , coming to terms with DS. Avery is one of twins boys. , I found it quite a good read, but the American experience re medical care etc semms strangely diff think it must just be the way healthcare is delivered.
Very poignant at times re the people that she thought were friends that stopped calling ! Jennifer has a blog which is called Pinwheels