Just wondering if anyone elses child seems generatly more tired than other children? Daniel is 4 and doing well, but quite often lies down on the floor to rest - this could be in the shops, at a party, (yesterday was at the bottom of a large slide in a soft play area...) He doesnt usually sleep in the day anymore, and can carry on through the day without being grumpy etc, but if he does it can be up to 2 hours long. I'm sure if I let him he would fall asleep in these random places!! He sleeps well at night - around 11 hours and rarely wakes in the middle of the night, eats and drinks well, takes vitamins... sometimes it seems he just needs to recharge for 5 mins, have a cuddle and then off he goes again...someone somewhere mentioned it could be because he has to work extra hard at physical things - he is pretty floppy and bendy still (walked at 2 half years) and that is tiring him out. Anyone lese notice this?? A bit of me is getting worried!! Thanks, Sarah xx
Hi Sarah, that sounds almost exactly like Josh! Josh just does not stop from the minute he wakes up! but he does have moments later in the day were he is almost asleep. He never actually falls asleep though & has usually between 10-12hours sleep at night. I totally go along with the idea that our lil' ones have to work harder at things during the day - just watching Josh bomb about nackers me out! lol.
Personnally i would'nt worry in the slightest & just enjoy those 5 mins spots of recharging!! lol
Im probably not the best person to reply as sleep is a bit of an issue here.
Lucy sleeps at least 2 hours in the day every day, but the sleep at night is terrible!!
Does he have the regular thyroid test? Lucy was incredibly tired, and difficult to wake before we discovered she had hypothyroidism. Tiredness was her main sympton before diagnosis so its worth bearing that in mind.
Also the hypermobility tires Lucys muscles and she often lays down and chills.
Hope he is ok, so difficult to know what to do sometimes.
Hi Sarah, I remember being told by the physio early on in our DS journey that our little ones use up more energy than other children when doing the 'normal'physical things cos of the hypermobility, it takes extra energy toget all the muscles etc right for the acttivity so they will tire more . Rachel does the thing where she'll stop for a rest , ie sit down in a shop etc, which is why I still mostly have the pushcahir with me. She doesn't sleep in the day now but if she does go off say on a car journey she will sleep for an hour or 2 , she sleeps for 10 -12 hrs at night too. Caught her the other day practising in front of the mirror doing the splits , slowly sliding her legs further & further apart & down - so don't know if this bendy flexibilty stays with them for the rest of their lives ?? My older daughter does sessional work with a teenage girl with DS & she seems toget tired towards the afternoons , & often has a siesta ( not really sleeping ) in the afternoon if she has an evening activity planned . xSusan
Hi Sarah Harry is similar, sleeps well at night (touch wood) but also every now and again he'll have a lay down on the floor wherever we are! The same as everyone is saying, Harry has to work extra hard to move around because of his floppiness so he wears himself out (wears me out too!). If you're worried though maybe worth getting his thyroid checked if it hasn't been done recently, like Karen has mentioned. Harry just got his thyroid tested etc and all is ok at the mo so his pitstops are just general tiredness xxx
Hi Sarah Rosie is the same with regard to having a little lay down wherever we happen to be at certain times of the day. She is very hypertonic and extremely active. She sometimes naps during day and generally sleeps ok at night but rarely gets her full amount of sleep cos she sometimes goes to bed late and still gets up early (she doesn't always like giving in to sleep!). She has just started pre-school so is more tired in the afternoon than usual. She has had her thyroid checked and all is ok for now. I was also told our little uns have to work harder to get their muscles to do what they want them to do cos of the low tone. Sorry i cant be of any more help. x
Thanks for the replies. I'm pretty sure Dan is just on the go all the time and he's been extra tired after school now which is to be expected! He's due for a thyroid test which is handy, although they have all been fine before, but you never know of course. As adam said I should enjoy the rare 5 mins peace!!
Same here - Caleb is shattered at the moment as he is now doing 5 mornings at nursery, he won't sleep in the afternoon but he barely makes it to 7pm and will sleep at least 11 hours now (Hallelujah, the 5 am wakes in the summer were horrid)
Josh has slept through the night since he was 7 wks old..although he wakes at 5am, but if you tell him to go bk 2 bed he will go bk 2 sleep. He is almost nine and if we let him he would still have a nap in the day for an hour or so. He sometimes will fall asleep on the school bus on the way home ect.
Rilith Josh was the same before he had his repair.. you would never have known he had a heart defect if it was nt for the doctors saying he did. Full of energy and ate well. never showed any signs of illness ect ...
Sarah, Jasnmine is exactly the same. She'll be a total lunatic running around and shouting one minute then collapsed in a heap in an almost trance like state the next. She has a little time out then gets her energy back and goes crazy again. She will just lie anywhere with her face on the floor. I find it quite amusing now that I'm used to it. Sometimes I'll pick her up and put her comfy on the sofa but if she thinks for a minute that I'm trying to coax her to sleep she'll be up and off like a rocket! lol