Hi, as being as its been ages since we used the board, thought id say hi again. Im Darren and my wife is Nicola, we live in West Yorkshire and have 2 children, one of whom, Kacie who is now 4yrs old and just started big school, happens to have DS. Her big brother Owen is nearly 6. Kacie has a couple of health problems, but luckily for us nothing major like some of the horror stories we have read about some little angels with DS. She has ketotic hypoglycaemia which is a bit frightening when she has a hypo, but apart from this she is fairly healthy and is enjoying life to the full. Hope to chat to more folks again on here.
Hi everyone - I have been back to visit this site but its often very quiet. Just to let you all know that I am organising a Down's Syndrome Conference in Plymouth on 4 and 5 November - it's only £20.00/family and there are lots of speakers. Take a look at the website... web.mac.com/sarahbateup/iWeb/Conference/Welcome.html
Hello again Darren! I remember you from way back on these here boards!! I too have been neglecting upfordowns, so looking forward to getting to know everyone again!!!
My name is Leanne, I have a husband Steve and 2 lovely boys, Jack 4 who has ds and Alex 2. I joined here when Jack was 6 months old and found it a great help to me in the early days... we are all doing great, Jack has no health problems and has just started mainstream school this September! so proud of him! He's not been there long but already made a big impression on the staff and kids alike... It takes us ages to get home on an afternoon as everyone stops to chat to us!!!
Hope to see some old and new faces on here it'll be great to catch up with you all and your little ones progress! xxx
I am happily married to Carl and we have 5 gorgeous kiddies together. Robbie 11 who has just started high school, Stevie is 9, Holly is 5 and she is our special princess, she has started full time mainstream this time, Tara is 3 in a couple of weeks and is a complete pain in my bottom, and Teddy (Theodore) is 15 months.
Holly still has a poorly heart, no signs of ever getting it fixed either. We are at Birmingham tomorrow for a check up so fingers crossed all will still be plodding on.
We still have no speech from her at all, not even a Mummy ;( but she signs well and grunts better than pigs
Hi, looking forward to catching up with new & old friends . I'm Susan, married to Michael , 4 children, Mark 26, Jason24, Jane 18 & Rachel who has DS is now 3yrs 9mths & I first came here when she was first born & we were struggling with it all , esp feeding but pleased to say Rachel is well & the only thing we have subbcumbed to is having to wear glasses ,she has quite alot of speech , 2 7& 3 words together , she goes to mainstrream nursery twice a week & we are at the start of the statmenting process for next year starting big school.
Last Edit: Sept 30, 2010 16:18:23 GMT by mum2rachel
Post by pinkshell1110 on Sept 30, 2010 16:34:06 GMT
hey everyone its been a long while so thought id better re-introduce myself too lol im shell mum to 6 fantastic kids aged 5 to 24 charlie is my special angel he`s 6 .5 now and after a poo start in mainstream school and a 18 month battle he now attends a special needs school which i have to say is amazing and he loves it he is so much happier now and learning soooooooooooo much more we have had a very tough 18 months with charlies chronic lung disease and things have been very tough the last few weeks , after having routine bloods done they have discovered his white cell count to be low although not too low so have to wait another 2 weeks for repeat testing and keep our fingers crossed it s not leukemia anyway hope everyone is well and happy and hope to catch up soon lotsa love shell xxxxx
Post by pinkshell1110 on Sept 30, 2010 17:20:43 GMT
i will hun 3 main reasons white cell count low are leukemia, hiv and infection so hiv out and wasnt ill at the time of bloods but still could have been an underlying infection so i am hoping infection is the cause xxx
Hi all - so great if we can get here up and runnning again! I'm Sarah, married to Craig and we have Daniel who is now 4. He started mainstream school this term and seems to be loving it! Luckily he's been healthy and he's pretty keen to learn stuff and doesn't miss a trick! His speech is fairly good too - LOADS of random (imitated!!) phrases...I have to be careful!! ( I heard him telling our cat off yesterday 'you dare - get off the table!' ) He's not so great on the motor skills though and can be a tinker!! We live in Southampton. So great to catch up with old and hopefully get to know new people! xx ps - really hope everything turns out ok for Charlie xx
Im karen I have a 12 year old son Luke, and a 3 year old daughter Lucy (DS)
Lucy has hypothyroidism and has to have 6 monthly blood tests at the moment while they get her thyroxine levels sorted.
She has recently developed a squint which she is due to see the DR for in december. (its not there all the time, and I have a sneaky suspicion she may be doing it on purpose as she laughs when she does it)!!
Just started pre-school and loving it, just keeps bringing all the germs home!!!
She signs like a pro, and can sing/sign loads of songs.
Currently being assessed for Autistic spectrum disorder.
hello everyone and welcome to all old and new members
i am Daniella and i am married to Adam. Our little prince is Joshua who is now 4 (5 in just 5 weeks!!) he has just started in a special school which he absoloutely loves. he is walking quite well. as of yet he mainly signs using makaton (thank god for justin fletcher) he does have a very small vocab - he says mumma, dadda, nanna (or heather - my mums name) grandad (or john - my dads name) he doesnt yet say jacob but he calls his brother bubba. although he doesnt speak he makes himself understood.
on to Jacob!! he is 2 and a little monkey! he is such a dare devil and he is forever falling over and banging his head off things! Joshua and jacob share such an amazing bond and they can be very loving towards each other - although like brothers they still have their moments
thank you all for your great response to the email earlier today lets get this site back to how it was and help each other through the next chapter of our lives.
Hi, I first registered and logged on here quite a few months ago after my younger son Tommy was born and diagnosed with DS. There didn't seem to be much activity so I'm not sure whether or not I posted a message! Delighted that the site is up and active again. Before we started our family we had experienced infertility and I gain a huge amount of support from an infertility support site.
So onto us. We live near York and have two children - Will who has just started school and Tommy who is 13 months and has just started mainstream nursery. I've just gone back to work part time after having had 14months off on maternity leave and annual leave.
Tommy is doing really well. Apart from seeming to have constant colds over the winter, and a mild conductive hearing problem he's been fairly healthy. He does appear to have developed a mild squint and has an appointment with the opthalmologist in Nov. He is excellent company and seems to have rapidly developed a fan club at nursery! He adores his older brother and this feeling seems to be mutual. Their relationship is lovely to watch (at the moment!) Well apart from Will wanting to test him out as a "wackermole" yesterday - but he was doing it very gently!
Look forward to reading more and "meeting" more of you.
hi everyone, how nice to read how you are all doing, Shell my fingers are well and truly crossed for you all. Our little ones dont seem to be so little any more, looking forward to new members, and catching up with old *ahem* ones .
I am Tace, married to George, we live in Peterhead in Aberdeenshire, Scotland, we have Freya who is 7 and Leo who is 5 (6 in dec), Leo has DS, just started P1 this year in an additional needs school, and is loving it, he's been there for 3 years in the nursery, its a fab school. I have gone back to school myself and am loving it!!
Leo has not much speach, but uses makaton and we are slowly getting there, he can walk but is still unsteady on his feet, he wears glasses but otherwise has no health issues. He has a huge fan club at school too, everyone want to take Leo home, and he loves to be the centre of attention!!
my name is lisa and my precious angel (although sometimes also a monkey!!) is harrison who is now 6 yrs old and has down syndrome, i'm also mum to samuel who is 9 yrs old....... hugely proud of both my boys.
look forward to catching up again with everyone & thinking of you shell, everything crossed for charlie, he's such a tough cookie & deserves a break so really hoping you get good news.
So nice to hear how everyone's little one's are getting on, although a lot of them seem to be not so little anymore, where have the last few years gone?
I'm Tina, mum to Brodie (6) who has DS and double trouble (Corbie & Lucas) who are 3.
After a bit of a rocky start Brodie's now getting on well at school and has just started year 2, although he's not very keen on doing the work side of it, he seems to be more interested in being the class clown and making everyone laugh! If we could get him to wear his glasses for more than 5 seconds at a time he might be able to concentrate on work a bit more!
His speech is coming on really well especially after having gromets fitted last month, if only i could find his volume control cause he does have a habit of shouting everything, hopefully he'll quieten down over time!
Hi, how nice to see some of the old crowd! I'm Max, I have Caleb who just turned 4 (!!!!how did that happen?) and Charis who is 19 months old. Caleb is my extra chromosomed precious lad. He's doing fine, main stream school, walks runs jumps and climbs like a goodun' we've had a constant battle with hearing loss and grommets but he just keeps healing them out too quickly! He is due to get some specs today just for long distance stuff but virtually zero hope of him willingly keeping them on! We've just moved house so we're doing the rounds of new paediatricians etc and they all say how incredibly healthy he is.
Got everything crossed for Charlie, hope it's just an infection, leukaemia is my fear and dread. xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Post by traceylouise78 on Oct 11, 2010 8:52:56 GMT
hi everyone!! please excuse the lack of capitals in this post, i'm one handed typing whist holding josh's new sister -megan who's five weeks old today!. josh is now 3 and two months and started mainstream preschool last month. he loves it and is coming on in leaps and bounds. he's a lazy little so and so though who still isn't walking al;though i'm convinced he can do it!! his health is pretty good - we just have ongoing hearing issues due to glue ear and he has terrible sleep apnoea. he's seeing ent next month and hopefully we'll have a date for grommets and toncils and adanoid removal
fingers crossed for charlie that its just infection. josh had the same thing when he was one - his bloods constantly had white blood issues - turned out he kept getting wee infections