I was diagnosed bk in nov last yr of having an asd and a low heart rate.
I had a toe done bk last month which has so far shown i do have a hole but it has a flappy bit on it .. what ever that means, and i have just had a 48 hr tape done .. still waiting to hear from a consultant as i still havent really seen anyone. Kaitie has an asd and they were hoping to close her hole through key hole but it turns out the asd is too close to the pulmanary vain that they have no choice other than to close the hole via open heart... We were gutted as they want to do it sooner rather than later. They now want to do a scan on my other daughter Maddie to make sure she is fine. Josh he was happy with , he still has leakage on the valves but nothing to worry about . very happy with his repair he had done back in 03. The baby Alex has already had a scan done and everything is fine.
So its gonna be a very busy yr back and forth hospitals this yr.